Abstract Background The European Platform on Rare Disease Registration (EU RD Platform) aims to address the fragmentation of European rare disease (RD) patient data. scattered among hundreds of independent and non-coordinating registries. by establishing standards for integration and interoperability. The first practical output of this effort was a set of 16 Common Data Elements (CDEs... https://www.marketingjeunesse.com/product-category/blacklight-20-vol/